Where has April gone?
I can't believe how long its been since I last posted. I keep waiting for Lenny to upload some recent pictures of Hadley. You might wonder why I don't just do it, well, I don't know how. I leave most of the technical stuff up to Lenny, but I'm thinking I may ask him to show me how.I know you all enjoy reading what the latest news is, but I'm sure you enjoy seeing her pictures more.
We had a really nice Easter. We went to church Easter morning. Hadley did really well, she even took a 45 minute snooze. Then it was on to my Aunt and Uncles house for Easter this year. We enjoyed spending time with my family for a couple of hours, but then we were off to Lenny's Great Aunt's house. We also enjoyed spending time with Lenny's family. Hadley was great the entire day.
The Tuesday after Easter Hadley started her new daycare. This is originally where we wanted her to go, but we lost our spot (that was held for 3 mos.) when she went in the hospital. Hadley did great!! She really seems to like it there. She worked right in to Ms. Judy's schedule. She usually takes one 2 hour nap for sure, but sometimes takes a cat nap in the morning at home as well. Hadley even has a little friend there. There is a 12 mos. old little boy whom she seems to really adore. Ms. Judy says that he "talks" to Hadley most of the day and she just giggles and kicks her legs and throws her arms all about. We still can't figure out what was up with the first daycare, but one thing is for sure....Hadley has her opinions!!
The next few weeks for us are going to be extremely busy. We have started to help my cousin and her husband with a snack shack that they run for a baseball association. In addition to that Lenny and I contracted to maintain the restrooms there as well. The contract is through July 15th. The money is really good for the short amount of time we will be doing this. We had Neocate (formula) in mind when we decided to do this.
This last week has been quite difficult. Hadley has had this nasty nasty virus. I thought the last "bad" virus was awful, but nothing compares so far post hospital. She was supposed to have her shots last Tuesday, but had a cough so I still took her in for her well baby check, and because of her cough. The Dr. said it was post nasal drip probably causing the cough, but her lungs were clear and so was her nose. Well, we got more than a well baby check. We brought home a virus. Jayne (the dietician) told me Hadley probably picked something up at the pediatrician's office. Long story short we have felt like we were right back where we were before she was hospitalized. Screaming her head off in pain, on pedialyte, had to be held. I spent Tuesday night through Saturday night with her on the couch overnights. A couple nights Lenny and I took shifts with her. She would not sleep in her crib and couldn't be put down. By Saturday she was a mess with this cough, virus, loose stools, and THE WORST blistery looking diaper rash I've ever seen. I ended up with double pink eye and an extremely sore throat. I did call her G.I. Dr. about her formula strength and mentioned in addition to her what my symptoms were. He said we had adneovirus and that in some people it causes loose stools and in some pink eye, that it depends on the person's immune systom. He assured me it would pass in 3 to 4 days. Seems like an eternity!! I looked up adneovirus on WebMD and sure enough it showed exactly what he said. Guess that is why he gets the big bucks!! :)
Today has been better. She is actually in her crib as I type this. I'm crossing my fingers she stays there. The couch is not exactly kind to the neck and back, plus I want all of us to get a good night's sleep. Grandma Kaczmarek is coming over to watch Hadley tomorrow. I was home with her Friday, but we are way too short at work for me to be able to stay home. I am so glad that Hadley is able to stay home one more day to get over this mess.
Hadley was re-scheduled for shots next Saturday, but I'm re-scheduling again. I've been warned that her shots could do the same something similar to what this virus has done, and I don't want us to go through this again in another week.
Whenever this happens, just like in a past blog that I wrote, it takes me right back. The long sleepless nights, her inconsolable crying in pain, never putting her down. I can't believe we lived like this for 10.5 weeks. On the other hand we didn't know any other way, and now we do. I think it makes it that much harder. To everyone else it probably doesn't seem like it would be that way. Logically I know it will come to an end, and she will get over the virus, but I always think what if. What if this virus would set her all the way back to square one, what if she gets a virus so bad she has to be in the hospital again. Jayne always assures me that my emotional reactions are normal among moms who have kids with severe MSPI. She always compares it to a type of post traumatic stress disorder, which I wholehartedly agree with. I don't think there is any way, even through my words in this blogg, that I can convey how helpless I feel when Hadley goes through this.
We had a really nice Easter. We went to church Easter morning. Hadley did really well, she even took a 45 minute snooze. Then it was on to my Aunt and Uncles house for Easter this year. We enjoyed spending time with my family for a couple of hours, but then we were off to Lenny's Great Aunt's house. We also enjoyed spending time with Lenny's family. Hadley was great the entire day.
The Tuesday after Easter Hadley started her new daycare. This is originally where we wanted her to go, but we lost our spot (that was held for 3 mos.) when she went in the hospital. Hadley did great!! She really seems to like it there. She worked right in to Ms. Judy's schedule. She usually takes one 2 hour nap for sure, but sometimes takes a cat nap in the morning at home as well. Hadley even has a little friend there. There is a 12 mos. old little boy whom she seems to really adore. Ms. Judy says that he "talks" to Hadley most of the day and she just giggles and kicks her legs and throws her arms all about. We still can't figure out what was up with the first daycare, but one thing is for sure....Hadley has her opinions!!
The next few weeks for us are going to be extremely busy. We have started to help my cousin and her husband with a snack shack that they run for a baseball association. In addition to that Lenny and I contracted to maintain the restrooms there as well. The contract is through July 15th. The money is really good for the short amount of time we will be doing this. We had Neocate (formula) in mind when we decided to do this.
This last week has been quite difficult. Hadley has had this nasty nasty virus. I thought the last "bad" virus was awful, but nothing compares so far post hospital. She was supposed to have her shots last Tuesday, but had a cough so I still took her in for her well baby check, and because of her cough. The Dr. said it was post nasal drip probably causing the cough, but her lungs were clear and so was her nose. Well, we got more than a well baby check. We brought home a virus. Jayne (the dietician) told me Hadley probably picked something up at the pediatrician's office. Long story short we have felt like we were right back where we were before she was hospitalized. Screaming her head off in pain, on pedialyte, had to be held. I spent Tuesday night through Saturday night with her on the couch overnights. A couple nights Lenny and I took shifts with her. She would not sleep in her crib and couldn't be put down. By Saturday she was a mess with this cough, virus, loose stools, and THE WORST blistery looking diaper rash I've ever seen. I ended up with double pink eye and an extremely sore throat. I did call her G.I. Dr. about her formula strength and mentioned in addition to her what my symptoms were. He said we had adneovirus and that in some people it causes loose stools and in some pink eye, that it depends on the person's immune systom. He assured me it would pass in 3 to 4 days. Seems like an eternity!! I looked up adneovirus on WebMD and sure enough it showed exactly what he said. Guess that is why he gets the big bucks!! :)
Today has been better. She is actually in her crib as I type this. I'm crossing my fingers she stays there. The couch is not exactly kind to the neck and back, plus I want all of us to get a good night's sleep. Grandma Kaczmarek is coming over to watch Hadley tomorrow. I was home with her Friday, but we are way too short at work for me to be able to stay home. I am so glad that Hadley is able to stay home one more day to get over this mess.
Hadley was re-scheduled for shots next Saturday, but I'm re-scheduling again. I've been warned that her shots could do the same something similar to what this virus has done, and I don't want us to go through this again in another week.
Whenever this happens, just like in a past blog that I wrote, it takes me right back. The long sleepless nights, her inconsolable crying in pain, never putting her down. I can't believe we lived like this for 10.5 weeks. On the other hand we didn't know any other way, and now we do. I think it makes it that much harder. To everyone else it probably doesn't seem like it would be that way. Logically I know it will come to an end, and she will get over the virus, but I always think what if. What if this virus would set her all the way back to square one, what if she gets a virus so bad she has to be in the hospital again. Jayne always assures me that my emotional reactions are normal among moms who have kids with severe MSPI. She always compares it to a type of post traumatic stress disorder, which I wholehartedly agree with. I don't think there is any way, even through my words in this blogg, that I can convey how helpless I feel when Hadley goes through this.
posted by skaczmarek @ 7:07 PM
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